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The Fibromatosis /Desmoid Tumour Site

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On this page I will provide links to various resources. Most are articles from medical journals, so they are fairly technical to read.

Desmoid tumours

Desmoid tumour

The desmoid tumour: choice of treatment and complications

Desmoid Tumours and their Treatment

Cicatricial Fibromatosis Mimics Metastatic Medulloblastoma (describes a desmoid tumour arising in a surgical scar in a 15-year old boy)

Desmoid Tumours

Fibromatosis

The Enigma of Desmoid Tumors.

Extra-abdominal desmoid tumors

Desmoid tumours of the abdominal wall: a case report

Desmoid tumour

Can you tell me what a desmoid tumour is?

The desmoid syndrome. New aspects in the cause, pathogenesis and treatment of the desmoid tumor

Soft-tissue desmoid tumors: radiographic bone changes

A Case Report on Aggressive Fibromatosis with Bone Involvement

OREF honors basic research on pathway in fibromatosis

Desmoid fibromatosis of the shoulder and of the upper chest wall following a clavicular fracture

The desmoid tumor. Not a benign disease

Extraabdominal Desmoid Tumor: A Study of 83 Cases.

Desmoid tumors of the chest wall. A locally recurrent problem

Extremity and trunk desmoid tumors: A multifactorial analysis of outcome

Desmoid tumour of the thoracic outlet: an unusual cause of thoracic outlet syndrome

What is a desmoid tumour?

A Desmoid Tumor Mimicking Common Neck Pain

Desmoid Tumours

Desmoid tumour: an angiographic study of five cases

Infantile Fibromatosis

Extended resection of a chest wall desmoid tumour with concomitant coronary artery bypass grafting

AGGRESSIVE FIBROMATOSIS. A RETROSPECTIVE STUDY OF 72 PATIENTS

Desmoid Tumour - rare pediatric disease database

TWO HUNDRED AND SEVEN EXTRA-ABDOMINAL AGGRESSIVE FIBROMATOSIS TREATED AT A SINGLE INSTITUTION: AN ANALYSIS OF OUTCOME

Desmoid Tumours

Fibromatosis

Fibromatosis of the breast :A clinical pathological and diagnostic evaluation of an uncommon tumor

Clinical Trials - enter 'fibromatosis' in the search box to find clinical trials for new ways of treating fibromatosis

Aggressive Fibromatosis of the Prevertebral and Retropharyngeal Spaces: MR and CT Characteristics

Challenges in the treatment of childhood fibromatosis

Treatment and Long-term Follow-up of a Patient with Hereditary Gingival Fibromatosis: A Case Report

University of Pittsburgh discovers gene mutation responsible for hereditary gingival fibromatosis

Superficial fibromatosis

Plantar fibromatosis

Plantar fibromatosis

Juvenile Hyaline Fibromatosis: Case Presentation (The Rehabilitation of Three Siblings)

INFANTILE DIGITAL FIBROMA (FIBROMATOSIS)

Desmoid Tumours and FAP

Familial polyposis coli (familial adenomatous polyposis or FAP)

Evidence for genetic predisposition to desmoid tumours in familial adenomatous polyposis independent of the germline APC mutation

Treatment of desmoid tumours in Gardner's syndrome

Familial Adenomatous Polyposis

Physical Characteristics in People With FAP

Desmoid Tumors in Familial Adenomatous Polyposis/Gardner's Syndrome

SandDude on Gardner's Syndrome

Familial Adenomatous Polyposis Coli (UK Best Practice Guidelines)

Desmoid tumours complicating familial adenomatous polyposis

Gene Transfer Approach for FAP Desmoid Tumors Seen as Feasible

Desmoid Tumours and Pregnancy

Desmoid tumour. The risk of recurrent or new disease with subsequent pregnancy: a case report

Full-term gestation and transvaginal delivery after wide resection of an abdominal desmoid tumor during pregnancy

Desmoid tumor arising in a cesarean section scar during pregnancy: monitoring and management.

Other Resources
I can't link directly to the articles on PubMed, but there is a lot of information there.  Just go to the link below and type 'fibromatosis' or 'desmoid' into the search box.

PubMed link

The Desmoid Tumour On-line Support Group is an email list for those who have desmoid tumours, their friends and family members, and their doctors. This is a great resource for people who need more information and/or wish to connect with other people in the same situation.  You can subscribe to the list at the link below.

The Desmoid Tumour On-line Support Group

The Desmoid Tumour Survivor's Group

The Desmoid Tumour Research Foundation

Treatment for Desmoid Tumours

Radiation therapy for aggressive fibromatosis. The Experience at the University of Florida

Treating Cancer with Radiation Therapy

Desmoid tumors: a novel approach for local control

Successful treatment of recurrent pelvic desmoid tumour with tamoxifen: Case report

Combination chemotherapy using vinblastine and methotrexate for the treatment of progressive desmoid tumor in children

Long-term results with radiation therapy for pediatric desmoid tumors.

Abdominal Irradiation - Managing Side Effects

BCCA Protocol Summary for Tamoxifen for Patients with Recurrent Desmoid Tumors/Aggressive Fibromatosis

Tamoxifen Questions and Answers

Radiation Therapy and Children

Chemotherapy for desmoid tumours in association with familial adenomatous polyposis: a report of three cases

High-dose Toremefine (T) in the treatment of desmoid tumors

COMBINATION CHEMOTHERAPY FOR DESMOID TUMORS

Cytotoxic Chemotherapy Induces Remission Of Intra-abdominal Desmoid Tumors

The pharmacological treatment of aggressive fibromatosis: a systematic review